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Dear Person with ALS:

This page allows you to register for the ALSconnection data base. The data base is a registry or epidemiological study that collects data from persons with ALS.

The purposes of this registry are to learn more about the origin of ALS and to improve quality of care for people with this condition. Information provided to the registry will be used to evaluate variations in patient care, adherence to standards of care and to help foster ALS research.

We primarily would like information from patients who are treated in the community and do not have access to specialty clinics for ALS. It contains 59 questions for persons with ALS. After you register you will see a consent form that explains the study in more detail.

We are looking forward to your data.

The ALSconnection Team