RESOURCES AND LINKS

Welcome to the link page of ALS connection. Every link that appears here was found to be a good resource of information for the ALS community. To make the search easier we categorized the links into different sections.

If you know of an ALS related site that you couldn’t find here we encourage you to let us know about it. Please send your site recommendations via e-mail to ChampiS@cpmcri.org. We will appreciate and investigate each suggestion.

ALS Organizations

The MDA website is a superb resource for people with ALS. For more information please go to:

http://www.mdausa.org/

The ALS Association is also a useful site. To find out more about ALSA please visit the following link:

www.alsa.org

General Neurology websites that have information about ALS

The World Federation of Neurology has a site dedicated to ALS. This site provides information about ALS related research and resources.

http://www.wfnals.org/links/index.html#Other

ALS research links

Below are links to three sites that provide an overview of current ALS research trials. The sites listed below are maintained by the MDA Association, ALS Association and the National Institute of Health.:

http://www.mdausa.org/research/ctrials.cfm

http://www.alsa.org/patient/drug.cfm?CFID=405740&CFTOKEN=52780165

http://www.clinicaltrials.gov/ct/screen/BrowseAny?path=%2Fbrowse%2Fby-condition%2Fhier%2FBC10.b%2FD000690%2BAmyotrophic%2BLateral%
2BSclerosis.k&recruiting=false

The ALS research group is an emerging North American organization of ALS researchers. Its goal is to foster communication, collaboration and research into the cause and treatment of ALS.

http://www.alsrg.org/Welcome.html

PALS (Person with ALS) resources

One website that contains many links to ALS related topics is ALS links. This website is maintained by a person with familial ALS who hopes that exchange of information and the increased knowledge gained may help treat or put an end to ALS.

http://www.alslinks.com/

ALSforums.com provides a free service in the form of a moderated Internet support group. Their community consists of individuals working together to exchange information and offer moral support.  The support group is for individuals that have been impacted by ALS / MND or PLS.

http://www.alsforums.com/

 


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