STUDIES

Clinical Trials in ALS (Power point slide show)  as presented in December 2005

Robert Miller, MD California Pacific Medical Center

What is a Clinical Trial? (PDF)

Dina Scholtz, MD California Pacific Medical Center

ALS Genetic Repository Project

The NINDS (National Institute of Neurologic Disorders and Stroke) repository allows receipt, storage, maintenance, standardization, quality control, ethical distribution of DNA and other resources important in the genetic study of Neurological diseases. The repository collects DNA samples and information from people with ALS.

For more information visit the website of the ALS Research Group

http://www.alsrg.org/

The Coriell Institute for Medical Research has the NINDS contract to receive, store, and standardize the collection of clinical data and DNA for genetics research in neurological diseases:

http://ccr.coriell.org/ninds/faq/faq.html

In order to learn more about the Genetic Repository Project in general please visit the following NIH (National Institute of Health) website:

http://grants.nih.gov/grants/guide/notice-files/NOT-NS-03-016.html